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Wednesday, January 22 • 2:40pm - 3:15pm
Track A: Patient Perspectives on Real World Data (RWD) & Evidence (RWE)

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  • This session provides a brief background on RWD and RWE as patients see them. 
  • Points include the way RWD/RWE impacts patients in ways that are not normally discussed with the intent to explain why key variables, such as adaptive design, health literacy principles, and data sharing and privacy are important factors for sponsors and vendors to incorporate into their trials. 
  • We will also describe what patients want and need from research, and how the approval process is only the beginning.


Speakers
avatar for Catina O'Leary

Catina O'Leary

President & CEO, Health Literacy Media (HLM)
As President and CEO, Catina O’Leary oversees Health Literacy Media’s core activities, including the Clearly Communicating Clinical Trials program (C3T), and works to set and maintain the strategic vision for the organization. Catina has steered the organization onto the course... Read More →
avatar for Deborah Collyar

Deborah Collyar

President, Patient Advocates In Research (PAIR)
Deborah Collyar has been a patient engagement leader since her first cancer diagnosis. She founded Patient Advocates in Research (PAIR) international communication network in 1996, "where research meets reality." Deborah infuses hundreds of patient advocates into research programs... Read More →


Wednesday January 22, 2020 2:40pm - 3:15pm